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SITEMAP
Alphabetical listing of
most pages on this site: Exceptions
will be state and county pages. Some are not linked from
this sidebar but from within a page
The CP Links Page is
where you will find most Federal, State and local County pages.
THE HOMEPAGE
WHAT IS CP
CEREBRAL PALSY
My attempt to
clarify CP you may find the information provided by 'NINDS' (below) is more
specific and detailed
TREATMENT of CP
There are many
different treatments and I only name those I am familiar with
Physical
Therapy
How it
is essential to maintain range of motion
Occupational Therapy
How it is
essential to maintain quality of life
Speech Therapy
What I know through my
experience By far not even close to what you
should know
Medication and Orthotics
Again what
I know through experience Much more
can be had searching the net or talking with doctors and therapists
CP LINKS
To Federal, State, County, City / Town and School District WebPages.
Health links and hopefully links to local disability sites and activity and events calendars
just drill down to the page you want
Cerebral Palsy Glossary
Terms
used when referring to items related to CP . Many of us may see these on a
doctors report and not know what it really means.
More Information of CP provided by NINDS
Perhaps a bit more concise and informed than my attempt to tell
of what CP is.
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What Causes Cerebral Palsy?
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What are the Risk Factors?
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Can Cerebral Palsy Be Prevented?
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What Are the Different Forms?
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What Other Conditions Are Associated With Cerebral Palsy?
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How Does a Doctor Diagnose Cerebral Palsy?
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How is Cerebral Palsy Managed?
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What Specific Treatments Are Available?
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Drug Treatments
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Surgery
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Orthotic Devices
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Assistive Technology
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Alternative Therapies
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Are There Treatments for Other Conditions Associated with Cerebral Palsy?
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Do Adults with Cerebral Palsy Face Special Health Challenges?
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What Research Is Being Done?
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Where can I get more information?
447 Specific Neurological
Disorders
Many of these 447 Neurological disorders do not fall under the
heading of CP but are disabilities nonetheless. Links to resources for all
447 My take on the IEP,
IDEA 2004 Public Law 94-142 & Public Law 101-476, and the 504 plan.
In 1990, changes to Public Law 94-142 arrived through
the Education of the Handicapped Act Amendments of 1990 (Public Law
101-476). Most apparent was the law’s name change – instead of the
Education of the Handicapped Act, it is now called the Individuals with
Disabilities Education Act. IDEA 2004
IEP overview
A Guide to the Individualized Education Program with sections
highlighted and comments by me
504 plan & IDEA Q&A
Protecting Students and others with Disabilities also a
list of accommodations and modifications as would relate to the school
environment. More on accommodations in the Parent and Educator Guide
Appendix E
Parent &
Educator Guide of 504 Plan concepts and real life accommodations.
Drafted by the OSPI and 5 Puget Sound area School Districts but would be a
valuable asset to any fighting for their child's 504 accommodations
anywhere U.S.A.
IDEA 2004 summary&
Title 1 IDEA as written
(Public Law 94-142 & Public Law 101-476)
A lot of legalese and unless you are a lawyer or are
looking for specific law probably will not be of much benefit.
You will better spend your time reading the Parent and Educator
Guide, the IEP overview and the 504 plan & IDEA Q&A
Washington State Chapter 392-172 WAC
SPED special education and the IEP
This is Washington State law as
regards the IEP and special education
Also a bit about our (current
Nov 08) personal
battle for Amber
Pierce County Events
Local events for the disabled If you
know of any let me know I'll post them here
CONTACT US
DONATIONS/GIFTS
AMBER'S STORY
Amber's story from birth to I
started this website. Her continuing
story is in the Blog
AMBER'S PARENTS
A bit about us
and maybe you will get to know why we did what we did and continue to do
what we do by knowing a bit about us.
Blog of Amber and Family
The continuing story of
Amber and family updated as I have time.
SHARE YOUR STORY
In the share your story section people like you will post their
unique experiences and through what is said you may find you are not
alone. You may also find a friend and someone you can relate to. And
possibly a way to realize your own goals.
MEMBER
PAGES
Those who have joined with me to
try to educate everyone of the trials of having a child with CP or other
disability and where to find information
CP FAMILY LINKS
Websites created by people who
have CP or someone in their family has CP. Sites whose pages are not directly
disability related. Net-etiquette applies. All sites are subject to
approval. Banners and text allowed on these links.
DISABILITY
LINKS PAGE
These would be links to commercial
disability links pages where you may find more detailed information of specific
disabilities as well as commercial products and services for the disabled. Links are text only with a line or two of information of the link posted..
NON CP
RELATED
OTHER LINKS PAGES
Posted 1st come 1st served. We hope to have many of
our friends and supporters post their pages here. Net-etiquette applies.
All sites are subject to approval. All Non-CP links are text only with a line or
two of information of the link posted.
Please notify me of any broken links so I can remove or fix them.
JOIN OUR NETWORK
Join with me in trying to educate the public of CP and other disabilities
WHY THIS SITE?
What motivated
me to build this site
CONTACT US
Direct your comments
to Robert.Making Money Online (or not)
What I've tried and what I believe. The things to
watch out for. Many with disabilities have a very difficult
time working a 9 to 5 so working online is a viable alternative. However be wary
of those who will take your money and not deliver any worthwhile information.
Other sites I have or to be more precise
the wife has and I take care of. http://tamicraft.com http://vintageslips4u.com
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PHYSICAL THERAPY
OCCUPATIONAL THERAPY
SPEECH THERAPY
MEDICATIONS ~
ORTHOTICS
Cerebral Palsy Is a catch all phrase for a myriad of conditions.
'See what is CP' But there are some universal
things that can be done. Others are more specific to the affliction one
has.
Many of us do not know we have a child with CP till their
development shows serious signs of being retarded in some way. Most
children with CP are not so afflicted that it is obvious till they grow
older. Some though are severely handicapped and these are diagnosed early.
Still there are things you can do early in your child's life that
can help them greatly even if they do not have CP. Range of motion is one
that would do no harm to any baby but would be essential for a disabled
child. Also providing the baby with a variety of sights, sounds, smells
and tastes to encourage development of those senses. We are like sponges
at such an early age and just soak up all this information. In time we may
discard that which we do not need but the having had it exposed to us can
never be of any harm. Provided precautions are taken such as not too
bright a light or too loud a sound etc...
Any child will
benefit from most you read here but a child with disabilities must have a
chance to experience a lot more as they need to form those connections in
the brain that they are lacking or have that range of motion that is
essential to their development.
Click the links above
to see what some of these may be. I've tried to provide what I know as it
pertains to my situation with my daughter. I have also added some of what
I have learned through my dealing with Therapists, Doctors and others with
CP or having children with CP. By all means the information I provide is
not complete and my advice is to get a doctors opinion and perhaps a
second and a third if need be.
Below are some
milestones that the CDC recognizes as ways to measures a Childs
development. if your child does not meet the standards you should consult
your physician. Also these standards are generalized for the average
population. If you feel your child is in need even if they meet the
criteria posted below then still have them seen by a professional.
It's time to change how we view a child's growth.
Do you know all the ways you should measure your child’s growth? We
naturally think of height and weight, but from birth to 5 years, your
child should reach milestones in how he plays, learns, speaks and acts. A
delay in any of these areas could be a sign of a developmental problem,
even autism. The good news is, the earlier it’s recognized the more you
can do to help your child reach her full potential.
Courtesy of the CDC
CDC.gov ( www.cdc.gov ) is your online source for
credible health information and is the official Web site of the Centers
for Disease Control and Prevention (CDC).
I would suggest you read the page on this site called
" More Information
of CP provided by NINDS As it delves deeper into CP and its causes
and treatments than I do on this page. If you have questions post them in
the forums.
Make a secure donation/gift through Paypal by clicking on the
link below:
Or you can make a donation manually by following one of the steps below.
Donations/Gifts are graciously accepted, Just log on to www.Paypal.com , Click "Send
Money" tab and follow the instructions to send money from an existing
Paypal account or by any major Credit Card. Use the email address below to
make a Donations/Gifts on Paypal.
If you do not see an email address it is because you need to enable
javascripts. The email is in javascript to foil the spambots.
You can also mail a Donation/Gift to
Tami Taormina
P.O. Box 4463
Spanaway, WA. 98387
If you have a site that deals with any disabilities then consider either joining CPFSN.org (it is totally free) and having a link to your site on the appropriate page (e.g. State, County) as well as the ‘Members’ page and the disabilities links page.
Or doing a simple link exchange and having your site appear on the ‘CP Family’ links page, if you or your child has CP or any disability. Your site does not have to be about any disability so long as you or your child has a disability.
If you do not have a disability or a child with a disability but have a site devoted to any disability you can have a reciprocal link placed on the disability links page
If you do not have a disability or have a site devoted to any disability you can still have a reciprocating link placed on the Non-CP other links page. A link exchange would not only show your support of this site but would increase your ranking with search through having another outside link (SEO).
Use the ‘Contact Us’ page and email Robert if you are interested in any link exchange or joining CPFSN.org. Send the information of the site you want us to link to and the Title and information as well as the URL you would like entered. I cannot guarantee that all requests will be honored but I will take a personal look and make a fair and unbiased decision.
To speed up the process have a link to my site on yours and send me the URL. Our preferred links can be found on any of our links pages (left
nav-bar)
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2007
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