Cerebral Palsy Family Support Network TM
Dedicated to helping families find the support services they need for children with disabilities.

Cerebral Palsy Family Support TM

Dedicated to helping families with children who have Cerebral Palsy or any other Neurological and/or Learning Disability find the support, resources and services they need.

Medical Malpractice Lawsuit

Amber's parents sue the Hospital because standard of care was not met and the result was a stroke and cerebral palsy

The Lawsuit Page 3

If you want to learn of the background leading to this page start here: AMBER'S PARENTS

    As I stated in other sections as part of the settlement I cannot disclose the Hospital nor the amount of the settlement ( not nearly enough). That said there are some things I  can tell you and some advise I'd like to share.

     First I am not a lawyer (nor would I ever choose to be one) and as such I cannot advise you on legal matters. I suggest you contact a lawyer for advise on legal issues.

      Now if you even think your child was in any way harmed by the action or inaction of any professional whether it be a Doctor or Nurse or general staff at a Hospital or a Therapist or any health professional at anytime in any way you should contact a lawyer. And not just any lawyer but one that specializes in medical issues. A medical malpractice suit may be your only chance to get the needed accommodations for your disabled child.

 


SITEMAP 

Alphabetical listing of most pages on this site: Exceptions will be state and county pages. Some are not linked from this sidebar but from within a page

The CP Links Page is where you will find most Federal, State and local County pages.

THE HOMEPAGE

WHAT IS CP
CEREBRAL PALSY

My attempt to clarify CP you may find the information provided by 'NINDS' (below) is more specific and detailed

TREATMENT of  CP
There are many different treatments and I only name those I am familiar with

Physical Therapy
How it is essential to maintain range of motion

Occupational Therapy
How it is essential to maintain quality of life

Speech Therapy
What I know through my experience By far not even close to what you should know

Medication and Orthotics
Again what I know through experience Much more can be had searching the net or talking with doctors and therapists

CP LINKS
To Federal, State, County, City / Town and School District WebPages. Health links and hopefully links to local disability sites and activity and events calendars just drill down to the page you want

Cerebral Palsy Glossary
Terms used when referring to items related to CP . Many of us may see these on a doctors report and not know what it really means.

More Information of CP provided by NINDS
Perhaps a bit more concise and informed than my attempt to tell of what CP is. 
  • What Causes Cerebral Palsy?

  • What are the Risk Factors?

  • Can Cerebral Palsy Be Prevented?

  • What Are the Different Forms?

  • What Other Conditions Are Associated With Cerebral Palsy?

  • How Does a Doctor Diagnose Cerebral Palsy?

  • How is Cerebral Palsy Managed?

  • What Specific Treatments Are Available?

  • Drug Treatments

  • Surgery

  • Orthotic Devices

  • Assistive Technology

  • Alternative Therapies

  • Are There Treatments for Other Conditions Associated with Cerebral Palsy?

  • Do Adults with Cerebral Palsy Face Special Health Challenges?

  • What Research Is Being Done?

  • Where can I get more information?

447 Specific Neurological Disorders
Many of these 447 Neurological disorders do not fall under the heading of CP but are disabilities nonetheless. Links to resources for all 447

My take on the IEP, IDEA 2004 Public Law 94-142 & Public Law 101-476, and the 504 plan.
In 1990, changes to Public Law 94-142 arrived through the Education of the Handicapped Act Amendments of 1990 (Public Law 101-476). Most apparent was the law’s name change – instead of the Education of the Handicapped Act, it is now called the Individuals with Disabilities Education Act. IDEA 2004

IEP overview
A Guide to the Individualized Education Program with sections highlighted and comments by me

504 plan & IDEA Q&A
Protecting Students and others with Disabilities also a list of accommodations and modifications as would relate to the school environment.  More on accommodations in the Parent and Educator Guide Appendix E

Parent & Educator Guide of 504 Plan concepts and real life accommodations. Drafted by the OSPI and 5 Puget Sound area School Districts but would be a valuable asset to any fighting for their child's 504 accommodations anywhere U.S.A. 

IDEA 2004 summary&
Title 1 IDEA as written (Public Law 94-142 &
Public Law 101-476) 
A lot of legalese and unless you are a lawyer or are looking for specific law probably will not be of much benefit. You will better spend your time reading the Parent and Educator Guide, the IEP overview and the 504 plan & IDEA Q&A

Washington State Chapter 392-172 WAC SPED special education and the IEP
This is Washington State law as regards the IEP and special education
Also a bit about our (current Nov 08) personal battle for Amber

Pierce County Events
Local events for the disabled If you know of any let me know I'll post them here

CONTACT US

DONATIONS/GIFTS

AMBER'S STORY
Amber's story from birth to I started this website. Her continuing story is in the Blog

AMBER'S PARENTS
A bit about us and maybe you will get to know why we did what we did and continue to do what we do by knowing a bit about us.

Blog of Amber and Family
The continuing story of Amber and family updated as I have time.

SHARE YOUR STORY
In the share your story section people like you will post their unique experiences and through what is said you may find you are not alone. You may also find a friend and someone you can relate to. And possibly a way to realize your own goals.

MEMBER PAGES
Those who have joined with me to try to educate everyone of the trials of having a child with CP or other disability and where to find information

CP FAMILY LINKS
Websites created by people who have CP or someone in their family has CP. Sites whose pages are not directly disability related.  Net-etiquette applies. All sites are subject to approval. Banners and text allowed on these links.

DISABILITY LINKS PAGE
These would be links to commercial disability links pages where you may find more detailed information of specific disabilities as well as commercial products and services for the disabled. Links are text only with a line or two of information of the link posted.. 

NON CP RELATED
OTHER LINKS PAGES
Posted 1st come 1st served. We hope to have many of our friends  and supporters post their pages here. Net-etiquette applies. 
All sites are subject to approval. All Non-CP links are text only with a line or two of information of the link posted.
Please notify me of any broken links so I can remove or fix them

JOIN OUR NETWORK
Join with me in trying to educate the public of CP and other disabilities

WHY THIS SITE?
What motivated me to build this site

  CONTACT US
Direct your comments to Robert.

Making Money Online (or not) 
What I've tried and what I believe. The things to watch out for.  Many with disabilities have a very difficult time working a 9 to 5 so working online is a viable alternative. However be wary of those who will take your money and not deliver any worthwhile information.

Other sites I have or to be more precise the wife has and I take care of.

http://tamicraft.com 

http://vintageslips4u.com

 

      Depending on the State you live in there may be a statute of limitations on how long you have to bring suit so don't delay. I can only speak to my experience and what I knew to be true at the time we filed suit here in Washington State (1992 - 1995) and everything I will say about the suit is based on this knowledge.

      I am not one to say you should bring suit on frivolous matters that are of no consequence. I didn't sue the Doctor that tried to remove a kidney stone and in so doing had me in the stirrups too long which caused a blood clot that messed up my leg and caused me to lose my business. I truly believe he did the best he could and that it was just misfortune that things went the way they did. I'm not going to punish him for doing his best even if that wasn't good enough. It may have crossed my mind as I lay in bed in agony but I never contacted a Lawyer. Frivolous lawsuits  just drives up insurance rates for the rest of us . BUT refer to what I said above. Any suspicion should be investigated fully by competent professionals. If you have legal recourse use it. This is your child your fighting for.

      In our case we didn't contact a lawyer till Amber was over a year old. We didn't have a clear diagnosis and there was just too many unknowns till we did. Also we were unaware of the 3 year statute of limitations. A good thing we talked with a lawyer before that had passed or we would have been able to do nothing. Once we decided to seek out a lawyer we saw three different ones. All were willing to investigate (We pay expenses) and all said they thought we had a very good case. Now a bit of advise. Some will investigate for free (Or so I've been told). They will get the records from the Hospital or wherever and they will have them gone over by competent professionals to ensure there is substantial evidence that a lawsuit is in order. Most lawyers will, at the very least, charge you to have this done even if they waive their fee. It could cost hundreds if not thousands to have this done. So be prepared for sticker shock and have a few bucks set aside for this. Here in Washington there are organizations for low income (without assets) that will help you. I will post these in the LINKS pages. But for the rest of us be prepared to pay through the nose. We knew we had a case before we went to a lawyer. We just knew based on things we overheard and things that were and weren't done. The lawyer merely confirmed what we already knew, at a price.

      We decided to go with a lawyer based on several factors none of which turned out to matter. One that you should be concerned with is how many such cases have they had and how many have they won or settled. This might give you an idea as to their competency but keep this in mind. Most Hospitals or rather insurance companies as that is really the ones who are going to pay will settle any case that they deem to have merit. As part of the settlement most will place  a gag order in the settlement so you cannot name the Hospital and/or amount. When looking at cases the lawyer claims to have won how many will he name the Hospital in? If he won't name it, it never went to trial. It was settled out of Court. Not necessarily a bad thing as going to Court will cost you everything you have, if you lose. But if all the cases are settled is the lawyer really all that good or is the insurance company just trying to save the Hospital embarrassment and themselves a greater sum of money? And is the lawyer just taking cases that are easy settlements? Something to think about.

      Anyway you have your lawyer and the ball is picking up speed. You are either being billed for costs or the lawyer is carrying them, with interest. Either way the initial amounts don't add up to much. Some copies of records, paying to have someone look at them, the initial filing of the suit. All can be done for a thousand or less. Then things stall as the games are played. In our case nothing much happened for close to a year. Then we had to take Amber to a Neurologist in Seattle. The lawyer saying that local Doctors are reluctant to do anything to other local Doctors. Made sense. Then we had to take her to one in California. Then the paperwork was sent to UCLA in California to specialists to determine if the standard of care was adequate. Then the other side had us take Amber to their doctors for assessment and on and on it went. We paid the first 8 or 9 thousand dollars out of pocket, then just let the lawyer carry the expenses at 12% interest as we needed our money to pay for essential services for Amber and to live on.

      Somewhere along the way the lawyer told us if this went to Court we'd be looking at over $100,000.00 dollars in expenses as we would have to pay people to fly in from California and elsewhere and pay their expenses and up to $10,000.00 a day per person while they were needed at the trial. And if the other side dragged things out it could go much higher.

      OK. I don't doubt this is true as we had already incurred almost $30,000.00 in expenses and they just kept adding up. But I also feel the lawyer was setting us up for a settlement. I think he was giving us time to let that $100,000.00 + number sink in and let us think about, could we afford it if we lost?

     At $30,000.00 I already knew I was going to have to take a second mortgage out on my home as to take one out on one of the rentals would have cost me more in interest as a non-owner occupied place. I wasn't sure I could make the payments. I was thinking I was going to have to sell a rental or two just to pay the expenses and then where would I be?

       Anyway so another year drags on and we are getting close to that three year thing and so we set a date for arbitration to see what they have to offer. Why they couldn't do it close to home I have no idea and why we had to go at all I have no idea as it could have all been done in a conference call at the lawyers office. But off we went to Seattle to some huge building with fancy offices and we all sat down and introductions were made. The talk gradually got around to Amber and My expectations and I said what I felt. That Amber had been harmed by incompetent Hospital staff and that I felt she deserved recompense for her disabilities that arose from her receiving less than what would be considered adequate standards of care. It may not have been those exact words but close. I'd read the reports and had talked with the lawyer and felt I needed them to know I wasn't some dumb shit who hadn't a clue. So I talked the talk and walked the walk, as it were, but inside the butterflies were eating me alive.

       They questioned the wife and I for a half hour or so and then made an offer.

     Now I need to give you a little lesson on Washington State as regards lawsuits of this type. During the early 90's.

     In Washington don't get all excited about winning a hundred million dollar lawsuit. In fact don't even think you are going to win the 10 million that woman who spilt hot coffee on her did. In Washington there are no awards for damages above those necessary for the care of the injured person for the remainder of their lives. That "Care Assessment" is supposed to be made by a qualified independent person who is familiar with associated costs. And the assessment is done based on the 'current' knowledge we have of the 'current 'condition. Nothing is added for things that may arise in the future and nothing is to be subtracted if like say through therapy motor skills improve.

       We had a person come into our home and assess Amber's needs and then figure a cost sheet over 70 years. This person did not and could not know the extent of the disabilities that may arise over time as Amber was only 3 years old and many things have arisen over the years that we never even considered. It wasn't till she was older and in school that we knew how the stroke had affected her mental abilities and though we could guess at her physical ones it wasn't till she was older that they became more apparent. This cost analysis was not even close to being  what was needed, especially considering the rise in medical care (20% a year according to the news) and housing (doubled in the last 3 years here where we live) probably triple or more since the suit. Who knew? But her condition at the time and the associated costs were used as a basis for settlement.

       I suppose housing wasn't even considered as they only concern themselves with what the personal needs are and how they can be met. Our assessment looked at therapy till Amber was 18 and medical devises like Orthotics (she was wearing a small one in her shoe at the time, She now wears a much larger one going up to mid calf of the leg and she needs to buy a size 7 shoe for the right foot and a size 11 shoe for the left foot. I don't think this was in the accounting) and to some degree devices to aide in daily living. A few associated costs like Amber cannot cut the fingernails of her right hand cause the left hand doesn't work so she will need to get manicures. And now with the Dystonia and spasms and the need of a walker and possibly a wheelchair soon these costs were never even considered. Neither was the rising cost of health insurance. Suffice to say the "Care assessment" was very low.

     The offer was below this "Care assessment". 

     We walked out and went home.

     10 days later we got a call from the lawyer. Another arbitration had been set up for the following week. The lawyer said he didn't know what the offer would be (yea right) but as the other side had asked for the meeting he felt confidant it would be higher.

     Back to Seattle only this time we never saw the other side. We were told they were in another room but they might as well have been on the phone or on the moon or not even players, cause we never saw them. The arbitrator would hustle between us and them with offer counter offer. What concerned me was with every offer he seemed to be talking to us of our responsibilities to our daughter and that in his opinion it would be a great disservice for us not to hear the other sides position. Thing is the other side wasn't there. I got the distinct impression, though he never actually said it but that he wanted us to settle. Maybe it was just me but that's the impression I got. Biased? Maybe. True? Probably. In either case isn't he supposed to be impartial? I got the distinct impression that I was being set up or manipulated.

     In the room with us was our lawyer and his right hand aide that went everywhere with him and another paralegal we had met and another woman we had never seen before. She was introduced as an employee of the law firm but I don't even recall her name. During the entire proceeding which lasted a couple hours she never spoke a word except to say, Hi. What she did do was take out a full size spiral binder and open it to a blank page and writing along the full length, as if in portrait mode on the printer, a six figure number with a $ sign in front. She just methodically wrote the same number over and over again throughout the meeting. By the end she had worn through several pieces of paper. I immediately knew what the final offer would be and I knew I was being played by my own lawyer. 

      After this revelation I barely kept track of what was being said. It was all for show anyway. What I did was weigh that number against what I knew. 

  • I knew that should we settle the lawyer was going to get 35% right off the top.

  • I knew that we had to pay the insurance company back every penny they had spent from the birth onward. This is a standard thing in insurance documents though they do not tell you. Yes, if you sue and win an award they get second dibs on the money right after the lawyer. To date that amount was a bit over $58,000.00.

  • I knew I had to pay expenses out of what was left. I had already paid close to $9,000.00 out of pocket but there was another $37,000.00 on the books I needed to pay. (I think the final total came in at just under $40,000.00) I couldn't do it without a second mortgage, which I couldn't pay for so that left selling at least 1 rental if not 2. If we lost at trial I'd be in big trouble but it gets worse.

  • I knew if we went to Court we would be looking at another $100,000.00 on top of everything else if we lost.

  • I knew that even if we were to win I would still be looking at all these costs coming out of any award we received. Including the $100,000.00. So being prudent I had to add at least another $250,000.00 to the offer on the table if we went to court as that is what would come out in the 35% to the lawyer and added costs of a trial.

  • I knew if the award was any larger the lawyer would just get that much more. And after his stunt with the new lady and the notepad I wanted to break his balls. I sure as hell didn't want him to get any more money.

  • I did some quick calculations in my head and knew that if I settled for the amount that bitch was writing over and over on that paper Amber would get just about what they had figured the "Care assessment" to be. Far less than she deserved and far less than she would need given inflation.

  • It was only in the six figures and mediocre 6 at that. How was I going to justify a settlement that didn't even cover the "Care assessment" that was estimated and low-balled at that? But then again how was I going to survive if we lost in court? My fledgling excavation business was not bringing in enough to survive without the rentals.

     Finally the offer came in. Right on with what the bitch had been writing over and over since we sat down 2 hours earlier. The arbitrator said final offer from the other side. Take it or leave it. I knew I was being played. I was in a corner though. If I were rich I'd have said "No Way!" But I wasn't rich. I turned to my lawyer and knowing his answer before even asking the question I said. "If this was your child. Knowing what you know about the case, and the odds of us winning or not. Would you take this offer?"

     He looked down as if in contemplation and then nodded an affirmative without ever looking directly at me. ( I knew he was lying) He then switched gears and said that if I took the offer on the table he would only charge 33% If it went to trial he would charge the full  35%. He also said he would take 33% from what was owed the insurance company so I would not have to pay the full amount out of our cut. If it went to trial I would have to pay the full amount from our cut after he took his 35%. Then he said it all hinged on us winning and even if we did prevail and win there was no guarantee that we would receive as much as what the offer was. It could be more but it could also be less. he mentioned the associated costs of a trial ( The $100,000.00 +) and then he reiterated that there was no guarantee we would prevail at trial, we could lose.

    You have to understand that here in Washington State there is no award for damages above those deemed necessary to provide for the injured person. So even if we won the Jury may say that the injury to Amber was not so great and so this $ amount is all we think she will need for essential services. 

There is no award for the hospitals staff screwing up. No multi-million dollar settlement no mater how terrible was the care. No award for expenses that are incurred either. Though I'm sure the jury would have taken this into account if we won and tacked it on to the award. There was always the possibility they wouldn't so what would we be left with. An award less than the current offer and expenses to pay out of that award and the lawyers 35% plus the insurance company and what would be left for Amber. NOTHING! that is what would be left.

 Only what was thought needed for the care of the person for the rest of their life would be awarded if we went to court. And though I thought it to be considerably more than the offer; would the jury?

 Well Amber had difficulties and there would be needed care but she could function on her own and though she was disabled she would most likely be able to get a job although it may be at minimum wage. So what care assessment would the jury look at. That provided by a supposed independent observer. Who did not take into account 20% medical inflation or even the 3% annual inflation rate and how could we know housing would double in 3 years and nearly double again in the next ten. or that Amber would develop Dystonia and eventually be in a wheelchair and in great pain. As Amber was not even in Kindergarten we had little knowledge of her mental abilities and these were not included either.

I had an offer before me that was far less that that which I knew we needed to care for Amber. But I also had a pregnant wife and we could ill afford to lose at trial and then even if we won what would be the award of the jury?

      I turned to the wife and asked what she thought. She just shrugged and deferred to me to make the decision. I don't think she was unaware of the gravity of the situation but I do think she hadn't considered all the possibilities as I had. I think she felt as I did the offer was low but I don't think, at the time, she had considered just what we would be left with and how it was going to affect our lives if we lost. I talked with her afterwards and found I was right. She thought the offer too low and expected I would turn it down, but left to me the decision as she knew I was ( How do I put this politely?) Well I was more apt than she to consider all the possibilities. There lets hope that flies high enough.

      I knew it wasn't right. I knew I'd been played like some puppet on a string. But the thought of all that money I would have to pay if we lost weighed heavy on my mind. Our standard of living would suffer greatly and with another child on the way I just couldn't risk it.

     I accepted the offer.

     I've regretted it ever since.

    The lawyer took care of the details. He paid out to the insurance company and to his expenses after he took 33% off the top. Amber got a lump sum for expenses and a structured settlement paid out over 10 years. This is over now.

      We received a lump sum to us to pay our personal expenses and with that we got the bank account back to a nice nest egg and what was left over we put towards the mortgage on our house. Not that we got enough to pay it off. 

     On a personal note:

      Our son was born some 6 months later. Luckily my health problems did not begin till a couple years later. By then we'd saved enough and together with the sale of a duplex we were able to pay the house off. Even if we lost everything else we would have a roof over our heads. Unfortunately my father suffered a stroke about that time and we moved him in with us. That meant 5 of us living in a 2 bedroom house. We had to sell a another duplex to pay for a new larger house we had built where another rental was. A mobile home that we evicted the tenants out of and sold. We already owned the land so it was the obvious and practical choice but we lost the income from that rental while the new house was being built. The consolation being when  the house was done we were able to rent the old house. My father had several more strokes and died 4 years after the 1st stroke. We had used all the monies we received in the settlement and the sale of 2 duplexes  to help pay for the new house and care for my father. There's nothing of what we received left. We eventually had to sell the last of our duplexes to pay off outstanding debt. We are now down to 3 mobile homes and the old house we used to live in as our sole income.

     Back to the lawsuit.

     We had to hire another lawyer to handle the setting up of a guardianship over the money Amber received and it was placed in blocked accounts, in like a trust till she turns 18. We have to have a lawyer do the annual accounting to the courts this costs about $1700.00 a year. We pay for this. We do not use any of her money to pay for anything except her income tax.

      According to the lawyer we could use her money for her care but we are her parents and if she didn't have this money we would still have to provide for our children anyway. So we do not ask the court for any monies out of her trust. We pay all the bills as parents should.

      There is not enough for her to live off of. Not even close. She will still need to find work. Hopefully there will be enough for her to buy a car, (Update; Due to her Dystonia and spasms I do not think she will ever be able to drive) see her through college, pay whatever medical expenses she has including health insurance, if she can get it, and put a down payment on a home of her own when she gets out of college and settles down. If she can do this the money will have been spent and she will have to live off what she earns like everyone else. Hopefully she can get a good job that pays well  cause she will still have some special care issues. And she will most likely have to pay for these out of what she earns. The care assessment was way off the mark. 

     My advise: Beware of lawyers! Their only interest is in making themselves rich. But they are a necessary evil and hire one if you even think you have grounds for a suit.

     A bit of a shift here. I recently had to hire a new lawyer to do the annual accounting and I prefaced our meeting by saying that I wasn't a huge fan of lawyers. He said "If you don't like lawyers, why should I handle your case?" I replied "Cause my money is just as green as the dumb ass who loves lawyers." I didn't give a damn if he took the case or not. There are a dozen more just like him in the phone book, and a couple dozen more after that. But even after having said what I did, He took the case. Though his fee was nearly $1800.00

     It's all about the green.

     If you live in Washington State don't expect a huge settlement.

     I hope my experiences have taught you what not to do.

And Lawyers wonder why we consider them as less than slime!

 Best of luck

Robert

P.S. Update Nov 2, 2008; Amber is having a really difficult time. Her spasms have gotten to the point where we think she will soon be in a wheelchair full time. She currently uses one at school. She is becoming more despondent and depressed and nothing we or her psychologist says is doing any good. She is talking more and more of killing herself and we just do not know what to do. We have taken control of her meds so she cannot use them to overdose but that seems a very small thing to do when there are so many other ways to end ones life. She either shuts us out and stays to herself in her room  or she attaches herself to her mother and lays on her in the evening or follows her about the house. I know the pain she suffers is difficult and I know the depression is real and formidable.

Amber cannot deal with disappointment and so we try to not promise anything and try to get others to do the same, cause when those promises are not kept it just really sets off her spasms and depression. She is so far down I do not think she can see any light at the end of the tunnel. She is a wreck and I don't know if she has the ability to hold it together till we find a way to control the spasms.

I sometimes wonder if we had gotten more money in the lawsuit could we do anything to alleviate these problems? Could we have her seen by really qualified specialists and get the spasms under control? Could we take her places she would like to go to put a smile back on her face? Could we afford some necessities that would make things easier on Amber as well as ourselves? Could we afford some luxuries that would brighten Ambers sprits? Would money make a difference? Or would we still be facing these same problems?

They say "Money can't buy happiness." But I do think it could buy better doctors and the items we have to fight the insurance to cover and it would allow for more care and more specialists and more things that would make Amber smile more often.

So do not settle for what they say is enough. Fight for what you think should be enough. My opinion and you can take it or leave it, but had I to do it all over again I would not have settled. I would have fought for more even it it meant we wound up with less.

I would suggest you read the page on this site called " More Information of CP provided by NINDS ". As it delves deeper into CP and its causes and treatments than I do on this page. 

 

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