Cerebral Palsy Family Support TM

The CP Links Page is where you will find most Federal, State and local County pages.

WHAT IS CP
CEREBRAL PALSY
My attempt to clarify CP you may find the information provided by 'NINDS' (below) is more specific and detailed

TREATMENT of  CP
There are many different treatments and I only name those I am familiar with

Physical Therapy
How it is essential to maintain range of motion

Occupational Therapy
How it is essential to maintain quality of life

Speech Therapy
What I know through my experience By far not even close to what you should know

Medication and Orthotics
Again what I know through experience Much more can be had searching the net or talking with doctors and therapists

CP LINKS
To Federal, State, County, City / Town and School District WebPages. Health links and hopefully links to local disability sites and activity and events calendars just drill down to the page you want

Cerebral Palsy Glossary
Terms used when referring to items related to CP . Many of us may see these on a doctors report and not know what it really means.

• What Causes Cerebral Palsy?

• What are the Risk Factors?

• Can Cerebral Palsy Be Prevented?

• What Are the Different Forms?

• What Other Conditions Are Associated With Cerebral Palsy?

• How Does a Doctor Diagnose Cerebral Palsy?

• How is Cerebral Palsy Managed?

• What Specific Treatments Are Available?

• Drug Treatments

• Surgery

• Orthotic Devices

• Assistive Technology

• Alternative Therapies

• Are There Treatments for Other Conditions Associated with Cerebral Palsy?

• Do Adults with Cerebral Palsy Face Special Health Challenges?

• What Research Is Being Done?

• Where can I get more information?

      I personally have spent literally months and yes probably over the years even more time than I can remember, in search of information, having to scour so many different sites to find a piece here and a piece there it would benefit us all if we could have links placed here that would point to sites that would have all the information in one place for the County or City that a disabled person lived in. Information that was relevant right down to the IEP and 504 plan for schools the contacts the people that handled the services, phone numbers and the like. Why should we have to struggle to find what we need. Either join our network and have a link to your site for your community or send me the information and I will place it here under the appropriate State, County, City and School if need be.

If you already have a web presence then use the Contact Us page to do a reciprocal link.

      If you do not have a web site there is free blog space and web space available and if you want more control there are some very inexpensive choices for web hosting as well.

      Not knowing what I was doing, I went for the premium package a few years back and have found that I could have done just as much with the cheap hosting package, but live and learn.

CEREBRAL PALSY FAMILY SUPPORT NETWORK

     The reason for the word NETWORK in the name is that I hope to be able to offer  services to others who want to help Children with Cerebral Palsy.  Any who want to start a Chapter of

CEREBRAL PALSY FAMILY SUPPORT NETWORK

      Will be able to do so for a simple prominent link back to us.  We would provide  some limited other support like maybe helping you put together a website or setting up your Forums or providing information for your site. But the real benefit would be in being part of a network where we can exchange information and help each other as it concerns Cerebral Palsy and other childhood disabilities.

    We would require The words

    ( Cerebral Palsy Family Support Network  ) and our logo be prominently displayed on at least one of the main pages of your site. With a link back to our home page.  This would be about the only requirement. That and of course the site deal with Cerebral Palsy or other disabilities providing services to people with disabilities in your community even if it is only information and/or a chat room and/or Bulletin Board / Forums or blog This is not to say the entire site need be about CP or any other disability. Though the homepage and I would think the majority of the site should be devoted to the disabled. If you are into quilting or bike riding or video games or whatever you could devote part of your site to such things within net-etiquette guidelines and not having to do with items such as pornography, racism, hate groups or other morally offensive things. I would monitor the site and reserve the right to pull our name and support if you were found in conflict 

      We would require that each entity get their own non-profit status, if they choose to go that route but if not they must clearly identify they do not have non-profit status also that though they are part of the 'network' they are individually or independently owned and operated and that we here at CPFSN have no liability for anything done by you or said on your site. This disclaimer must be placed on each page of the site that in anyway mentions or refers to CPFSN except on a reciprocal links page.

     I haven't worked out the details yet but I'm thinking about it

     But I want to grow this movement so that people with CP and especially those having children with CP or other disabilities have a way to find answers and talk with others in their local community and within their State and on a National and International level as well.

    If you are interested contact me, Robert, information on the contact us page. 

For those of you that have web sites you know that SEO (Search Engine Optimization) and PR (Page Rank) is based on a lot of things and one of them is having links to sites that have similar content. By us working together and posting each others links we would be increasing traffic to our sites and increasing our PR.

As a member you have three different pages on this site linked to you. disabilities links, members links and a link for the city, county or state you want. If you or a family member has CP or other disability you would also have a link on the CP family links page . One there even if your site does not deal with providing information about the disabled. As far as SEO goes having that many links to you will encourage more visits and higher ranking. We only ask for a highly visible link on a main page of your site. If you would rather do a simple reciprocating link that is just fine as well.

Make a secure donation/gift through Paypal by clicking on the link below:

Or you can make a donation manually by following one of the steps below.

Donations/Gifts are graciously accepted, Just log on to www.Paypal.com , Click "Send Money" tab and follow the instructions to send money from an existing Paypal account or by any major Credit Card. Use the email address below to make a Donations/Gifts on Paypal.

 

If you do not see an email address it is because you need to enable javascripts. The email is in javascript to foil the spambots.

You can also mail a Donation/Gift to 

Tami Taormina

P.O. Box 4463 

Spanaway, WA. 98387 

    

 

If you have a site that deals with any disabilities then consider either joining CPFSN.org  (it is totally free) and having a link to your site on the appropriate page (e.g. State, County) as well as the ‘Members’ page and the disabilities links page.

Or doing a simple link exchange and having your site appear on the ‘CP Family’ links page, if you or your child has CP or any disability. Your site does not have to be about any disability so long as you or your child has a disability.

If you do not have a disability or a child with a disability but have a site devoted to any disability you can have a reciprocal link placed on the disability links page

If you do not have a disability or have a site devoted to any disability you can still have a reciprocating link placed on the Non-CP other links page. A link exchange would not only show your support of this site but would increase your ranking with search through having another outside link (SEO).
  
Use the ‘Contact Us’ page and email Robert if you are interested in any link exchange or joining CPFSN.org. Send the information of the site you want us to link to and the Title and information as well as the URL you would like entered. I cannot guarantee that all requests will be honored but I will take a personal look and make a fair and unbiased decision.

To speed up the process have a link to my site on yours and send me the URL. Our preferred links can be found on any of our links pages (left nav-bar)

 

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